Can’t believe this can happen in the USA
I, Georjean Parrish, really have many questions that had been avoided and unanswered. I have a registered letter from Mayo refusing to treat me after a near death experience at Mayo Scottsdale. I was diagnosed on 11/13/2008 in the ER by Dr Ricky Arnold, my husband and I were told, by this doctor I had a very rare advanced stage of kidney cancer that had spread to my lymph nodes and lungs and I needed immediate surgery and he would make all the arrangements for us. So on I went to Chest x-ray, biopsy,and the plan was, chemo then surgery, then more chemo, then at the last-minute, they scheduled chemo that was changed at the last-minute to surgery 1st then they would do the chemo. Well by time I was well enough from septic shock, and complete organ failure and fungal infection plus staff, I started asking about the chemo related to my cancer and I was told, “oh no you have no cancer, it was a pre-cancer, and I was not considered a cancer survivor.” Urology surgeons/doctors were Dr Eric Castle and Shane Daley and Dr Ferrigni. After complete left kidney,ureter and aortic??? lymph nodes – my intestines were punctured and I spent 25 days on life support in medicated coma then 14 surgeries and 4 months in a hospital. I am told “You need to be grateful you are cancer free, NOT a cancer survivor and alive. My family was told on 12/19/2008 it didn’t look good and my doctor said I had zero % chance of survival.
I feel it is my responsibility to share the events that led to this terrible mess : Documented in my Mayo medical records 10/28/2008 thru 4/30/2010 – the date they will no longer treat me.
I have conducted an audit of my own medical records and the hidden story is amazing and scary. I will from here on out in my life be a patient advocate for immediate release and request of all medical records for patient (COVER to Cover) not just what the facility/providers feel is pertinent.
Also my other cause will be to get a petition to require all surgical consent forms must have specific diagnosis information and reason for the procedure. NO PATIENT should ever check medical records and find the surgery shows ELECTIVE and the SURGEON has note “presumed transitional Cell Carcinoma” and only “Renal mass” and loose a perfectly functioning kidney. All my creatine tests documented since 2001 show normal, but now they are out of whack. My husband and I were told it was a very advanced stage Kidney Cancer.
Talk about profiling – I think we need to worry about a few of our doctors. This is criminal.
To see my 25 + years of qualifications to conduct an audit of medical records please reference my LINKEDIN site. Georjean Parrish.